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Support to cancer patients

Support to cancer patients

Posted by Bharti on Oct 14, 2020 10:50 pm

I am going through breast cancer. I was recommended to contact Canadian cancer society. I was disappointed to not get any kind of help. Neither family caregiver, nor child care nor transport nothing. All, I was given was some paid taxi phone no’s. I would rather call Uber for my chemo appointments. I would never support financial donation events boasting to help fund cancer patients.

Re: Support to cancer patients

Posted by cancertakesflight on Oct 15, 2020 7:53 am

Bharti‍ Thank you for reaching out. A cancer diagnosis is a scary and emotional experience and it can feel even worse if you don't get the support you need.  You have certainly come to the right spot for talking to people who have had a variety of experiences with cancer. 

When i was diagnosed with breast cancer in 2011, I called the Canadian Cancer Society and will always remember the warmth of the person's voice when she asked me how I was doing. She actually seemed to care. I am sorry that has not been your experience.

I'm not sure what number you called. There is some great information here Talk to an Information Specialist

As for this site, there are so manu great people to talk to. If you feel comfortable you can look through the gŕoups to see whar might interest you or go to the Introduce yourself discusson and tell people about yourself. There are topics that are specific to breast cancer if you go to the Types of cancer discussions.

Please know that you can just read for now to find the information and comfort you need.  You will see that you are not alone. We are here for you whenever you feel comfortable sharing. 

I hope you will tell us about yourself. Congratulations on taking the step of advocating for yourself. We all have to do it from time to time.

Lacey_Moderator‍ and Lianne_Moderator‍ are the moderators of this site and are two of the most caring individuals you would ever want to meet.

cancertakesflight 

Please keep us posted. 
Laughter is a lifestyle choice. www.laughterandcancer.com/blog

Re: Support to cancer patients

Posted by Lacey_Moderator on Oct 15, 2020 11:04 am

Hi Bharti‍ 

I'm sorry to hear you didn't find what you were looking for. A cancer diagnosis is stressful enough without worrying about transportation and childcare. 

At the Canadian Cancer Society we provide Information, support, fund cancer research, and do advocacy work. We maintain a Community Services Locator of cancer related services that our helpline uses to help people find services. Unfortunately sometimes there are not services available. I'm sorry to hear that was the case. COVID-19 has impacted some volunteer transportation programs and other in person services. 

I have also sent you a private message to see if I can help further. 

Where are you currently having treatment?

Lacey

Re: Support to cancer patients

Posted by Bharti on Oct 15, 2020 11:34 am

I called cancer care society. Zero help or support provider. Extremely disappointed. I think you may have hindsight bias with all wonderful support from Canada cancer society. I am one who has seen the worst of them in these covid times. Left all by myself.

Re: Support to cancer patients

Posted by LGS on Oct 15, 2020 12:04 pm

I have to agree, I was diagnosed with breast cancer early this year, completed chemo and currently undergoing radiation. All at the time of covid. Since I live alone and have no family I reached out to numerous agencies for support and found the same. I had to fend for myself. There was no support.

Re: Support to cancer patients

Posted by Bharti on Oct 15, 2020 12:30 pm

This is concerning - more than one cancer patients are reporting Canada cancer society was of zero help. Covid can’t be an excuse in this case for such a large non profit org; especially 6 months into covid. 

Re: Support to cancer patients

Posted by Bharti on Oct 15, 2020 12:33 pm

Lacey, 
responded to your private message. Hoping you can help. Last 2 months as cancer patient has been traumatic with no help from Canada cancer society. And “fighting” on forums like this for help is even more stressful apart from the cancer treatment.

thanks,
bharti

Re: Support to cancer patients

Posted by Lacey_Moderator on Oct 15, 2020 1:59 pm

Bharti‍ - I have responded, and look forward to your response. 

LGS‍ - I am sorry to hear you were left feeling like you had to fend for yourself. How are you doing now? Are you looking for specific services?

Re: Support to cancer patients

Posted by AliceM on Oct 16, 2020 7:12 am

Hi Bharti. So sorry you are dealing with all this on your own. Unfortunately 2020 is a terrible year to get cancer.  I know. I was diagnosed in April and had my mastectomy in May. I walked into all my appointments, my surgery all alone. It is a very stressful and traumatic thing even in the best of times. Many of the services for cancer patients has been suspended due to covid. My cancer clinic has an excellent Wellness centre with great programs for patients but it sits closed up. My surgeon’s nurse and receptionist have been great in offering support and answering questions but I know how alone I still felt through it all. 
Fortunately I have a newly licensed daughter who could drive me around. 
This is a great community to find answers, share frustrations. Always remember you are not alone!

Re: Support to cancer patients

Posted by Mammabear on Oct 16, 2020 9:49 am

I never reached out to the Canadian Cancer Society for help. Just for reliable information rather than Dr. Google. 
Curious to know what province you are in and where your provincial cancer agency is in providing help.
I would think most if not all would provide counseling services and I know BC has a financial aid and volunteer driver program (not sure if it is operating in Covid).
At the end of the day, we need to rely on our family and friends to support during this crisis.

Re: Support to cancer patients

Posted by Bharti on Oct 16, 2020 2:07 pm

Lacey_Moderator‍  - thanks for sending me private message with resources. No surprise, to me, all have turned out to be NO help. I still have to finish calling couple of them. But I wanted to drop the update here to keep transparency how lonely and traumatic it is for cancer patient. Covid that began 6 months ago, can’t be an excuse today. Don’t get me wrong Lacey, I know you are not to blame, and I am not blaming you. But I am certainly disappointed with Canadian cancer society. If I were to record some conversations I am having, you will be surprised !! Eg one volunteer org I called today for transportation, asks me “why don’t you drive yourself to your chemo appointments?” , “why you calling us and not Canadian cancer society?”. Bizarre !!! 

Re: Support to cancer patients

Posted by Bharti on Oct 20, 2020 11:44 am

Most disappointing part of financial assistance programs is that they look at family income instead of looking at the income of patient suffering from cancer. This needs to change !!