My wonderful silly man who was diagnosed with Renal Carcinoma August 2018 was placed on an Immuno Therapy Trial. His first 4 cycles were on Opdivo and Yervoy. Within 4 months his Thyroid had ceased to function and it took over a year with an Endocrinologist to finally get the Hormone replacement to balance out his system. During this time, he has been on the Opdivo only. Blood tests every week and the tumor has shrunk in size. Yay. Recently he has been experiencing some weird reactions. Dry skin has always a problem for him but this was raw. Headache and then double vision. Dry mouth, red tongue and then the thirst hit. He has his infusion biweekly and his blood showed his glucose was elevated...slightly. He went into the Cancer Lab for his infusion on Wednesday and all Hell broke loose. Unbeknownst to me (I was waiting in the truck in the parking lot for 7 hours trying to get answers) my husband had been sent into Emerg in a state of Ketoasidosis. My daughter called the Hospital and was transferred to ICU. I knew something was dire but could not get an answer out of anyone. Nor could she. I'll cut to the chase of this long story. Things are different under Covid Rule so I did not want to upset the applecart. Well it turns out that the Admitting Doctor is no longer. It is a Hospital List. That Doctor can not and will not call family unless the patient asks. My husband thought I was being kept up to date. After 3 days of me wringing my hands I may see my man home by tomorrow. He will be on Insulin the rest of his life. It will be hard to get him to give up chocolate. So I guess the morale of this story is...Do Not Assume. Keep knocking on doors until you get an answer. Even our Family Doctor and the Endocrinologist were unaware this had happened. Having said all that, I want to say that I think these Health Care Workers are Angles here on Earth. Thank you one and all. Bureaucracy sometimes gets in the way.
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