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serous uterine cancer

serous uterine cancer

Posted by sher on Sep 16, 2018 10:44 pm

Please, if any one can help me I would so appreciate it.  My sister was diagnosed with serous cancer the end of June, 1018.  She only had three drops of blood postmenopausal (57, sooo energetic and lively and you would never know she had any issue).  She went in for total hysterectomy july 5, 2018.  It had already metastized to colon and small intestine.  Since that surgery, she has had NO relief from nausea.  They have tried soo many drugs to relieve the protracted nausea.  Please, does anyone have any ideas for me??
 

Re: serous uterine cancer

Posted by Elsie13 on Sep 16, 2018 11:42 pm

sher‍ , So sorry that your sister has to go through this.  Glad you have found us here in cancerconnection. 

I think probably only doctors will understand the nausea situation, as every case is different. There's something I'm not quite sure about though. She had the hysterectomy, but she still has the cancer in the colon?  So is she scheduled for further treatment,  such as chemo, or radiation or more surgery? Maybe the next phase of treatment  will stop the nausea?  I don't have medical training.  I'm just trying to think what it could be. 

Re: serous uterine cancer

Posted by Elsie13 on Sep 16, 2018 11:47 pm

sher‍ Maybe Ttjia‍ and Birdwoman‍ will have some ideas about this.  Also you could look around the Uterine Cancer discussions: 

https://cancerconnection.ca/discussions/viewcategory/76

Re: serous uterine cancer

Posted by Ttjia on Sep 17, 2018 3:15 am

Hi Sher, so sorry to hear your sister is having sooo many problems with nausea, I had an operation for endrometrial cancer (historectomy) did not have your sisters problem, although they did find clear cell endrometrial cancer which I had to have radiation treatments, I was very nauseous the first week of treatment then I was given the proper  diet and it cleared up. Have they tried different diets? Do they intend on more treatments or are they waiting for the nausea to clear up. ? Wish I could be more help with the nausea problem  hope there is a solution fast. It  is so hard to watch someone you love go through this and feel so helpless. 
Ttjia

Re: serous uterine cancer

Posted by sher on Sep 17, 2018 10:08 am

Thank you for your kind support.  I wasn't sure how much to post.  The surgeon felt confident that the serous cancer was contained to the uterus.  When they went to do the hysterectomy, they found that wasn't the case.  They removed all that could be seen from her colon and did a colostomy.  Her wound is healing nicely and her labs look good, considering.  She has had 3 treatments of chemo, with 2 more planned.  If there is no progress all chemo will be terminated.  All this began July 5.  The Drs. at Mayo are stumped by the protracted nausea, of which she has only had a few days relief in total since July.  The oncologist says that occasionally they get cases like this and they don't know why.  The only relief from nausea is the day before chemo when she received an IV 'cocktail ' for nausea.  She sometimes also has a good day after chemo.  But, then back to bed unable to tolerate smells, sounds, etc due to nausea.  The Drs are trying to manage this and I know its their job, but I was just hoping perhaps someone else had ideas.  Thank you!

Re: serous uterine cancer

Posted by sher on Sep 17, 2018 10:21 am

I forgot to address two things that may be helpful.  At the time of surgery she was staged at Stage 4a.  They have continued treatment even with the nausea.  She is unable to eat so they provide TPN as the nausea makes it impossible to eat.  Thanks again.  It's nice to hear from people who understand what this is like!

Re: serous uterine cancer

Posted by Ttjia on Sep 19, 2018 12:30 am

Sher , thinking of you and your sister if there was only someway to help, you being there for her and supporting her is all anyone can do just continue loving caring and just hope and pray things improve.For a better tomorrow take care of yourself to, itis so hard feeling helpless. 
Ttjia

Re: serous uterine cancer

Posted by sher on Sep 19, 2018 11:25 am

Ttjia--thanks so much for those kind words and for thinking about us.  My sister is getting slight relief with a medical canibis regimen a Dr. is working on with us.  Even thought the nausea was at an 8, we've brought it down to a 5-6 with this treatment so a vast improvement, really.  Its quite a journey and I know no more about nausea and how its treated than I ever imagined in case anyone needs to know:)  We are all taking this day by day...blessings to you too:)

Re: serous uterine cancer

Posted by Ttjia on Sep 20, 2018 7:13 am

Sher, so glad to see something is starting to help even just in a small way. Hope this will continue so your sister can have  some  relief., I do keep thinking if was my sister and how I would feel , so glad you found this site and all the wonderful support you will find here, thinking of you Charlotte.
Ttjia

Re: serous uterine cancer

Posted by sher on Sep 20, 2018 10:30 am

Thank you for keeping us in your thoughts.  Yes having this happen to her at such a relatively young age is shocking and yet makes me grateful for having such a bond with a sister.  Today is a chemo day, and these are her best days so we hope this will continue.  I am happy to have found this site too!  I am hoping your health is good and you have as much loving support as you give, Charlotte.

Re: serous uterine cancer

Posted by sher on Sep 20, 2018 9:57 pm

Good news today! chemo day for us is always good because of the IV for nausea...My sister DECORATED for halloween today...almost made all of us cry...We pushed hard for an mid week IV of the nausea "cocktail" and after refusing, the Dr.s agreed, primarily due to a close Dr friend of mine helping us mindfully push.  At this point, we only hope for as many days as we can get of fulfillment.  I've learned so much about how to navigate nausea and working with Drs and nurses to get the best life for my sister.  Please, if anyone needs help, I am more than happy to provide information.  Please keep us close to your hearts. 

Re: serous uterine cancer

Posted by Ttjia on Sep 20, 2018 10:10 pm

Sher I am sp happy for both of you I can just imagine the joy you had watching your sister decorate almost like she was back to normal  and her old self. Pray this treatment keeps working. It is wonderful you want to help other people. All the best Chsrlotte
Ttjia

Re: serous uterine cancer

Posted by sher on Sep 20, 2018 10:16 pm

Thank you so much again for your kind words, Charlotte.  I have spent my life devoted to helping others and its been so nice to have your support in helping me.  I will at least sleep tonight knowing that my sister had a fulfilled day, and that there are strangers, like you, who will take the time to reach out to some one in need.  I pray your life, and everyone who reads this, is blessed with kindness and compassion.

Re: serous uterine cancer

Posted by Lianne_adminCCS on Sep 21, 2018 12:21 pm

sher‍ 
So glad to hear that your sister had a good day. She is very lucky to have you not only supporting her but advocating for her. 
Happy that you found us here and have connected with Ttjia‍ 

Keep reaching out - we are listening

Lianne

Re: serous uterine cancer

Posted by sher on Sep 21, 2018 7:40 pm

Thank you so much, Lianne.  Today was another good day--out of bed and gardening!!  The IV nausea works wonders for her and she will be back in for an IV nausea treatment on Monday. She was even talking about doing a sisters trip to NY after chemo!!! Please keep us in your thoughts and prayers.  October 11 is a big day for us as we will see the CT results to determine if the overall tumor load has decreased.  We are trying to remain positive and in the moment.  Every day is a precious gift to us. Thanks for listening and reaching out.

Re: serous uterine cancer

Posted by Ttjia on Sep 21, 2018 8:21 pm

Your post sounds absolutely wonderful, I can just picture your sister out gardening and you with her with a great smile of relief on your face I sencerly hope things will continue to improve for your sister and you can go on your trip together, my first trip alone with my sister I can honestly say was one of the best most memorable  times of my life, to the best garden and the best trip. charlotte
Ttjia

Re: serous uterine cancer

Posted by sher on Sep 21, 2018 10:36 pm

Thank you, Charlotte.  There are five of us girls, working together to help her create the best last days of her life.  I've spent countless years studying death and dying, and I've always thought that when my time comes, I want to have a beautiful death.  I've created a beautiful life and so a beautiful death would be an honor.  I can't even begin to imagine what a beautiful death looks life for someone else.  But, I do know this:  I want for my sister to have a beautiful life in the days she has remaining.  And, I want to be there, fully, showing up, every minute of it, even through the pain, sorrow, and and especially the joy.  Of course, not all of my moments are this present.  But, tonight I'm grateful for another good day.  Thank you for imagining for us and enjoying with us, the moments we had today.

Re: serous uterine cancer

Posted by Cynthia Mac on Sep 22, 2018 9:39 am

You are both blessed to have that kind of relationship with your sister. Mine is very critical and hurtful, and I have had to let go of the relationship. The last crack in the chasm started when she sat in my living room and said, “I couldn’t live like this.” I quit completely the day she wouldn’t give me our brother’s cell number so I could try and find out how our Dad was doing the day after he’d hurt himself at home.

Re: serous uterine cancer

Posted by Brighty on Sep 22, 2018 9:56 am

Cynthia Mac‍  omg I'm so sorry your sister is like the to you!  You don't deserve  that!!!!!! You are a kind and amazing  person and I don't get why she'd be that way toward you.     I hope in time she comes around!

Re: serous uterine cancer

Posted by sher on Sep 22, 2018 11:52 am

I'm sorry for the struggle with your sister.  I don't want to paint a rosy picture of my relationship with my sister.  We were best friends through out our childhood, but we had many years where we weren't even speaking for reasons that no longer matter.  Even at the time of diagnosis, things were friendly but not perfect.  I had been blessed with incredible medical contacts, and it took a little bit for her to trust that I love her so she could accept help from a MD that is my friend, but has been tirelessly working with her oncologist and our family to greatly improve her life and help us cope.  She refused help at first from a couple of specialists because the recommendations came from me.  Finally, through desperation, she gave up that grudge and allowed people close to me to help. My sister was my best friend as a child, and she made my life so much better in so many ways.  Its partly because of my gratitude for what she did for me as a child that I offer unconditional love to her now.  I know some relationships just cannot continue, and I fully respect, understand, and support that decision that anyone makes for themselves.  For me, I've come to a place where I just believe as all human beings, we are connected.  When I offer love, I feel better, so in that way I'm selfish!  At any rate, I send blessing of healing and compassion to anyone in a difficult relationship!

Re: serous uterine cancer

Posted by Ttjia on Sep 22, 2018 2:38 pm

Cynthia Mac so sorry to hear about your relationship with your sister glad Sher and Brightly contacted you looks like you need all the support you can get and you have definitely come to the right place. You choose your friends but family is what you are given. I find it so hard to believe family can treat you so badly no one needs this kind of treatment. I know it was hard to cut all ties with your sister but the situation was toxic for you. I Just hope one day she wakes up and sees what she has thrown away. I gave been very lucky to have one of the best sisters you could  ask for, I hope coming to this site and getting all the support you need can help we are all here for you. 
Ttjia

Re: serous uterine cancer

Posted by Cynthia Mac on Sep 22, 2018 4:57 pm

Thanks, ladies, for your kind words. I’m alright. It’s been like this most of our lives. The difference has been that on those times when I found out (or figured out) that I had offended her, I would apologize. The incident over our Dad, though, was malicious, and she chose not to apologize for that. That was the game changer. Enough.

I am blessed to have a few good women friends who are like sisters to me. Count yourselves among them!

Hope you’re all having a super day! I was at a spinning meeting (making yarn). We did a core spinning workshop, and I didn’t want to stop to go and get dinner!

Re: serous uterine cancer

Posted by Lianne_adminCCS on Sep 22, 2018 7:30 pm

sher‍ 
So great to hear about another good day for your sister. You are both definitely in my thoughts and I love the idea of planning for a girls trip!

Keep reaching out - we are listening

Lianne

Re: serous uterine cancer

Posted by sher on Sep 23, 2018 12:57 pm

As everyone of us knows, this is a mighty roller coaster ride.  Last night began what has been a long and challenging night for my sister.  She was admitted in to the hospital late with a spiked fever.  Right now she is septic from an infection in her Hickman line.  Today they will put in a PICC line today and pull the Hickman tomorrow and put in the new line after 48 hours with antibiotics.  Thank God for the kind Drs and nurses taking care of her.  We are struggling today but have received so many kind words that have made a difference.  Thanks to all of you, too.

Re: serous uterine cancer

Posted by Ttjia on Sep 23, 2018 2:52 pm

Sher so sorry to hear your sister is having more problems, sounds like the doctors are on it and hope this clears up fast. I can feel how overwhelmed you are by one thing after the other when all you want is your sister to get better. I do pray you and your sister have many years to grow old together. My thoughts are with you and your sister. charlotte
Ttjia