Posted by Brighty on Nov 15, 2018 7:18 am
Posted by ACH2015 on Nov 15, 2018 8:53 am
I read your other post as well, and will respond to both of your posts here.
The link below from the Canadian Cancer Society describes squamous cell anal cancer as being very common. It discusses many aspects and treatment options available.
Many of the questions you ask won't be answered until you meet your oncologist at the cancer center. The treatment options put forward will determine how much time you will spend in the hospital and if you will be admitted.
The link below from the Canadian Cancer Society is a good guide to help get you organized for your first and subsequent visits to the hospital. I also suggest you get a name and contact number for a social worker at the hospital. They are great assistance in helping with services you may need, and are there to help guide you, and are also someone to talk to before, during and after your treatment.
Waiting is difficult, but once you meet with your medical team, any further tests or imaging and the plan they put forward for your treatment will be explained to you. It''s always a good idea to take someone else with you to help with questions and gathering information. Write down your questions, and don't hesitate to ask the doctors to clarify anything you may not understand during consults.
You can call the Canadian Cancer Society for information and assistance in your area at 1-888-939-3333, There are many services available, including information specialists that can answer specific questions you have about your situation.
I hope this helps you start out on your pathway. As you get more information about specifics, please let us know and we direct you to other members in your situation.
ardenb and Clint are members here that may be able to offer some personal information to you as well.
Keep well and keep in touch with us.
ACH2015 - Andy.
Posted by tbruce on Nov 16, 2018 2:09 pm
Posted by mrstoa on Nov 17, 2018 2:11 pm
I am having radiation therapy in Victoria - with no idea of what is involved. I'm waiting for their call to give me dates etc.
i'm concerned about accommodation, meals etc. i will be alone as dh cannot come with me.
Funny how these little things are plaguing me.
thanks for invite to fb group
Posted by Lianne_adminCCS on Nov 17, 2018 5:19 pm
I am glad you were able to get some great feedback and support here.
I have replied to your accommodation request here.
If you have other questions on what resources and services are available to you in your area or near where you are being treated, you can also call our Cancer Information Service at 1-888-939-3333
Posted by Elsie13 on Nov 17, 2018 10:20 pm
mrstoa would like to know about the tag function. To tag someone, you type the @ symbol and start typing their name. Several suggestions will pop up, so you just click on the one you want.
Posted by tbruce on Nov 18, 2018 4:59 pm
Posted by DaisyCure on Jan 26, 2019 6:27 am
Posted by DaisyCure on Jan 27, 2019 6:16 pm
Posted by tbruce on Jan 28, 2019 10:27 am
Posted by Elsie13 on Jan 28, 2019 3:01 pm
DaisyCure So near the beginning of this thread, Andy, ACH2015 posted a couple of links, so I just reposted them. (I don't want to say 'scroll up' or 'scroll down' in case it's the other way!)
Posted by DaisyCure on Jan 31, 2019 3:42 pm
Posted by tbruce on Feb 2, 2019 12:18 pm
Posted by DaisyCure on Feb 5, 2019 10:20 am
Posted by ACH2015 on Feb 5, 2019 11:10 am
I've read back in some of your posts and have some suggestions for you to help your mother manage some of the side effects and pain issues.
1 - Pain: Has your mother discussed tumor pain management with her medical team? Pain is an important factor to get the best control of. Being in constant pain can wear a person down very quickly and make bearing treatments worse.
Many people fear being given pain medications for various reasons. Keeping on top of pain before it get unbearable is the key to keeping dosages at a minimum. This is something worth discussing asap with your mother and her medical team.
The cream you mention (flamazine or other sulfur based) along with the sitz bath will help manage the physical discomfort.
2 - Treatment plan. I can speak to the regime and what it can do to a person. I've had chemo, surgery x 4, radiation and immunotherapy (so far) during my experience.
It is important for your mother to discuss the symptoms she is suffering from with the medical team. Nausea can be managed with medications, fatigue is managed best by going with the flow, and sleeping / resting when your body says to do so.
Many times the oncologist can modify the chemotherapy regime if the symptoms require it. Low blood counts, infection, and other serious complications mean the treatments can be reduced or postponed until the person is able to tolerate them better. However the best results come with completion of the treatment plan.
You and your mother could benefit from understanding the process, and why its important to complete the many phases involved. Completing only partial treatments will most likely result in substandard results and failure to meet the objectives of the treatment plan. Those include, palliative, control or curative goals.
It's tough and sometimes understanding all the phases of treatment gives the person the extra push needed to move forward and complete the plan.
3 - The PICC line. This is a valuable tool and helps reduce the long term effects of chemotherapy being introduced directly into a vein. My left arm is useless for blood work etc, as I initially did not have a PICC line.
The other benefit is that you don't have to endure multiple needle sticks to get the chemotherapy or other drugs intravenously. One shot - its done.
I hope this information helps you and your mother get through the process a little easier.
ACH2015 - Andy.
Posted by tbruce on Feb 5, 2019 12:20 pm
Posted by DaisyCure on Feb 6, 2019 6:40 am
Posted by ACH2015 on Feb 6, 2019 7:06 am
You posted questions about Vitamin C infusions on Jan 31/19.
Both ashcon and I responded to your questions. I've copied the thread for you below. In short, there is no proof any of theses alternative therapies work, and I suggest you read the responses in their entirety. This is not an opinion this is a fact.
Conventional caner therapies involving chemotherapy are harsh as you put it. Cancer cells and normal cells are killed in the systemic process, however the normal cells are able to regenerate themselves quickly once the process is completed. The hope is that the chemotherapy destroys the cancer cells or reduces them to the point that surgery or radiation allows for them to be removed (tumor) or further eradicated.
Its good to hear your mother's pain control has improved since the last post.
ACH2015 - Andy.
Posted by tbruce on Feb 6, 2019 2:43 pm
Posted by Cynthia Mac on Feb 7, 2019 7:30 am
DaisyCure ,the health nurse also recommended taking pain meds on the prescribed schedule to prevent “spikes” in Dad’s pain level. He did eventually stretch out his regimen, but for those first few days after surgery, especially, it’s good to have the meds in the system at a consistent level.