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Palliative care is more than end of life care- video

Palliative care is not only for people who are at the end of their life. This video shows how early access to palliative care can offer physical, emotional, social and spiritual support for people with cancer at any stage.

5 Replies
Dave58
290 Posts

@Lacey_Moderator Awesome, informative video ! Definitely helps break down the barriers connected with this type of care. Thanks for posting !!

Thank you for your feedback @Dave58. I will pass it on to the team that develops the videos.

So important for folks to understand the value of palliative care.

I appreciate you taking the time to comment,

Lacey

Boby1511
720 Posts

@Lacey_Moderator

I have been in palliative care for over a year now. Great people. Very responsive.

We chat regularly, like therapy in person. It's been nice. They also have coordinated my at home care with my home hydration and have gotten me extra scans and such.

My pall doc has also signed off on my MAID application.

I have only done so well emotionally because I had these people supporting me.

Its also good to inform people that you can still get chemo/radiation while in palliative care. You don't lose your regular team, you just add.

@Boby1511

Thank you so much for sharing on a personal level how much it has helped you! IT is so important for others to hear firsthand experience.

I just wanted to say I have followed your experience since the beginning when you first joined. You have come a long way when it comes to quality of life and symptom management. Would you agree? I'm so impressed with how you have pushed through and been so candid here always jumping in to help.

Thanks for being a strong voice in our community, You are so appreciated!

Lacey

S2020
715 Posts

@Lacey_Moderator, thank you very much! That sentence, “Palliative care may help people live longer”, is a very important message. I did not know this when I started palliative treatments.

The first time I was told I was going to be given palliative treatments, I was angry. (Not a “Why me?” type of anger. Why not me? Why anyone?) I was angry because I only knew about palliative care in the context of end-of-life care. My level of independence, mobility and activity was on the opposite end of the spectrum of people I used to work with in palliative care so I was confused as to why ”palliative care“ was being used in reference to my case. The oncologist didn’t have any answers to my questions and there was never any mention of a palliative care team.

This video informs people that the scope of palliative care has expanded. Thank you to you and everyone who created the video.

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