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Soft tissue sarcoma

Soft tissue sarcoma

Posted by Lana777 on Sep 3, 2017 5:22 pm

Hi , im new on this site. Any one has this type :alvealar soft part sarcoma? Its the rarest common type of sarcoma My brother has been diagnosed with it . With lung metastasis.

Re: Soft tissue sarcoma

Posted by Elsie13 on Sep 4, 2017 1:44 pm

Hello Lana777‍  Welcome to the site. So sorry to hear about your brother's cancer. I'm afraid I haven't heard of that specific type. Perhaps you would be interested in joining in on some caregivers' discussions, or start your own topic? https://cancerconnection.ca/discussions/viewcategory/35
In 2016: diagnosed with stage 2 ovarian cancer. Treatment: hysterectomy, chemo, radiation. Afterwards: No Evidence of Disease!

Re: Soft tissue sarcoma

Posted by Elsie13 on Sep 5, 2017 3:35 pm

Lana777‍ perhaps you can connect with jorola‍ who is a caregiver. 
In 2016: diagnosed with stage 2 ovarian cancer. Treatment: hysterectomy, chemo, radiation. Afterwards: No Evidence of Disease!

Re: Soft tissue sarcoma

Posted by jorola on Sep 5, 2017 7:41 pm

Hi Lana777‍ 
I am so sorry to hear about your brother's diagnosis. How is he doing? How about you? When my husband was diagnosed I lost it. I went through counseling and sought help from great people on a site like this. It sure made a real difference in my life to be able to talk to others going through this.
Does he have a spouse and kids? Are you going to be his main caregiver? I am here to talk any time.
All the best,
Jodie
Live, Laugh, Love

Re: Soft tissue sarcoma

Posted by Lana777 on Sep 12, 2017 3:13 pm

He is doing good with no symptoms he started his medication a week ago hopefully it will help him How is your husband? And when he was diagnosed?

Re: Soft tissue sarcoma

Posted by Lana777 on Sep 12, 2017 3:13 pm

He is doing good with no symptoms he started his medication a week ago hopefully it will help him How is your husband? And when he was diagnosed?

Re: Soft tissue sarcoma

Posted by Lana777 on Sep 12, 2017 3:16 pm

No spouse and kids , he is 25 years old just graduated from the University

Re: Soft tissue sarcoma

Posted by Brighty on Sep 12, 2017 5:39 pm

I'm so sorry to hear of your brother's diagnoses.   Please please up updated on how he is doing
Help is out there. All you have to do is reach out.

Re: Soft tissue sarcoma

Posted by kargi on Dec 13, 2017 9:55 am

Lana777:
No spouse and kids , he is 25 years old just graduated from the University

Hi how is your brother doing? My husband was given the same diagnoses Friday Dec 08. Has your brother gone through his treatment already? Sending prayers for you and your brother.

Re: Soft tissue sarcoma

Posted by gitanna68 on Jan 10, 2018 1:26 pm

Hi LANA, i,ve  been  living  with  leiomyosarcoma  since  june  2007. Operated, italien reapered  june 2013. 3 year  1/2 chemo. Hopitalased  in palliative  floor. Thé tumor  was not operabled. Il made  méditation  visualisation  André quantum  physic. M'y oncologist  tôld  me ...in my  carrer  i,ve  seen  4 Tim es a  case  like  yours . ..m'y tumour  on m'y vein  door  the  liver  dissapered  André 1 metastasis  the  ôther  one  removed  bye radiofrequency  in thé liver. We  are january  2018. Still  living. Il am  in a hurry  today  preparing  à supper  for  friends  of  mine. Nevers lose  hope  gitanna68
Gitanna68

Re: Soft tissue sarcoma

Posted by kargi on Jan 10, 2018 2:36 pm

Thanks gitanna68 for the update. My husband was diagnosed with Leiomyosarcome Dec 08 2017 and will be seeing the surgeon, first dr visit. on Monday Jan 15. I am so grateful to read your update as I am feeling rather down with all this waiting to see how severe his cancer is. God bless.

Re: Soft tissue sarcoma

Posted by gitanna68 on Jan 10, 2018 9:03 pm

In  m'y case it  was à high  grade, équivalent  stage  4. If they  give  you  an appointment  with  à surgeon  i  have  a good  feeling  that  s  operabled  gitanna68  
Gitanna68

Re: Soft tissue sarcoma

Posted by Justinc on May 16, 2018 1:50 pm

I was just diagnosed with a malignant fibromotosis tumour I am told i may have the NF1 gene mutation my brother had 6 years ago and well continues to have. We have seen a sarcoma tissue specialist and then we're referred to the NF1 clinic at Toronto Western. I have a lovely wife and two beautiful daughters.

Re: Soft tissue sarcoma

Posted by Elsie13 on May 19, 2018 5:31 pm

Hello Justinc‍ . Happy to see that you are finding your way around cancerconnection. Perhaps kargi‍ and Lana777‍ will share their stories with you, regarding their relatives. 
In 2016: diagnosed with stage 2 ovarian cancer. Treatment: hysterectomy, chemo, radiation. Afterwards: No Evidence of Disease!

Re: Soft tissue sarcoma

Posted by kargi on May 22, 2019 6:21 pm

My husbands cancer is back!!!! Another leiomyosarcoma in his right upper arm, same spot as before. They removed the second sarcoma and have now found that there are 3 leiomyosarcomas in his lungs, waiting to see a lung oncologist now. Has anyone gone through this and won this terrible disease?