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Ewing Sarcoma

Ewing Sarcoma

Posted by Kebbie on May 14, 2014 9:21 pm

My intellectually challenged 21 year old brother has Ewing's Sarcoma in his vertabrae.

Does anyone else here have any experience with Ewing Sarcoma?

Re: Ewing Sarcoma

Posted by heather1 on May 15, 2014 1:00 pm

Hi Kebbie - have you checked out Amcornish's blog? I think you might find it extremely helpful, and you may wish to send her a friend request, too. 


Re: Ewing Sarcoma

Posted by Tiffany on Oct 3, 2015 11:07 pm

You might also want to check out The Ewings Foundation of Canada. 

Ewing Sarcoma: Post from Holly Butcher

Posted by ashcon on Jan 10, 2018 10:04 am

Hi everyone, and Mellybean‍ ;

Just came across this beautiful post from Holly Butcher a young woman from Australia.  She was diagnosed with Ewing Sarcoma and recently passed away (Jan 4, 2018). 
Her family decided to share her message with the whole world and I am glad they did! 
We can all learn from this amazing young woman!

Go out there and give to someone today. 
heart.

 
---- "Nothing ever becomes real till it is experienced." ----

Re: Ewing Sarcoma

Posted by Mellybean on Jan 11, 2018 1:22 pm

Thank you Ashcon!

I really appreciate the tip.  This seems like a good place to leave a reference to Alora's Blog, we lost her in August of 2013 but she documented her journey with Ewings too.

Mellybean