Log in or Register to participate in these discussions

Bladder cancer radical cystectomy

Bladder cancer radical cystectomy

Posted by gordr on Sep 21, 2020 11:30 am

Looks like I need to have the bladder removed. I have a high risk tumor that has repeated after treatment although everything indicates it is contained within the bladder after two TURB procedures. So if I get it out I have two options. The ileal conduit or the stuber pouch. I meet all of the criteria for the stuber pouch and so would like some feedback on which option I should exercise. Your help is appreciated.

Re: Bladder cancer radical cystectomy

Posted by Lacey_Moderator on Sep 21, 2020 11:37 am

Welcome gordr‍ 

I'm glad you found our community!

I did a search for 'radical cystectomy' and found the following discussion threads that may interest you:https://cancerconnection.ca/search?search_filters%5Bcontent%5D=forums&query=radical+cystectomy. To connect with someone who has posted hit reply and tag them by typing the @ symbol and their username.

I hope this helps,

Re: Bladder cancer radical cystectomy

Posted by Clarke on Sep 22, 2020 2:25 pm

Hi gordr
Just had an anniversary dinner for 1 year since discharge from hospital after my radical cystectomy!
i chose the ileal conduit or external bag attached to my leg.  It required building a new exit tube for urine through my abdomen, using a piece of my lower intestine.
The exit point, or stoma, is still being cleaned and dressed by my nurse twice a week, as my wife and I can not do it. The external tube and bag are changed weekly.   
I have been very satisfied with the process and my resulting life changes.
If you have questions, let me know and I will let you know,,,
Clarke Edward, Cancer Free for a Year😃😀

Re: Bladder cancer radical cystectomy

Posted by Clarke on Oct 20, 2020 5:55 pm

Hi, gordr‍ 
How are you doing?
Which method did you end up choosing?
Surgery upcoming, or done?

As I retired 20 years ago, I have taken ample recovery time and am available as an experienced, cancer-free survivor.

Re: Bladder cancer radical cystectomy

Posted by Boby1511 on Oct 20, 2020 10:25 pm

You are so open. Thank you for sharing part of your cancer story.
Do they not attempt maybe just radiation for bladder cancer if tiny? 

Re: Bladder cancer radical cystectomy

Posted by Clarke on Oct 21, 2020 11:42 am

That could well be.  Mine was very large.