My father was just diagnosed with what the doctor is saying 'not even Stage 1 yet' bladder cancer but the tumor was high grade. I am wondering if anyone has a similar experience and can give me some information? I am worried and overwhelmed.
Welcome to the site. I am sorry to hear of your father's diagnosis. Has your father been seen by an oncologist yet? Have his doctors given any indication of what treatment might be involved?
I want to introduce you to lisac who was recently diagnosed with bladder cancer and JLUVRAS whose father has also been diagnosed. Perhaps they can share a little bit of their experience for you.
It is not surprising you are feeling worried and overwhelmed. As the family of the diagnosed, it can be very difficult on you as well. Do you have someone in your circle you can share these feelings with so you are not feeling alone?
So far, he’s had TURBT which has helped us get the diagnosis. He needs 2 more surgeries- another TURBT and a ureter resection because the cancer crept in.
Has your doctor told you what the grade of your tumor(s) is?
As far as I know with stage 1 it is TURBT surgeries and possibly chemo. Once it goes to the muscle layer the bladder needs complete removal as it spreads quicker in this layer.
Getting my 6 month CT scan today.
Feeling old, disabled and discouraged..
my father has transitional cell carcinoma pta 2a, non muscle invasive. He has had this for the last 7 years and was going through regular cystoscopy and turbt whereby they would remove any small tumour or growth. In these 7 years he was also given intravasical chemo for 6 weeks whxih had a good prognosis’s but then the cancer did come back for which the regular cystoscopy and turbt was done. Unfortunately I am no longer with him in the same country. my father lives in Pakistan and I have recently moved to toronto. I have decided to call my parents over to toronto and live with me. But they would not be covered by Ohip and insurance does not cover cancer. I wanted this forums help in connecting with relevant personnel who can help me figure out the costs/ treatment procedure for someone who is not ohip covered. I wanted to get an idea of an estimated cost, procedure, timelines for appointment etc to plan their move here. I would really appreciate if some one can help me with this information or help me connect with some one who can.
thank you and bless all of you!!!
My dad and I are in a similar situation. So much so, that I thought maybe I had written your post and forgot 🤣. I’m a bit technologically challenged so I’m trying to figure all of this out along with trying to organize my dad’s appointments and trying to keep my own mental health in check! I don’t have any useful information for you but as crappy as it is, it’s a little bit comforting knowing we are not alone. Good luck to you and your dad.