welcome to Cancerconnections.
If you go to the top of the page, right hand side and use the search function to look up bladder cancer, you will find several threads/discussions and can join in any of these you find relate to your circumstances. You can “tag” other members by typing the @ sign and then typing the user name, no spaces. Several names will pop up and you can click on the user you hope to connect with.
i have added a link http://www.cancer.ca/en/search/?q=Bladder+cancer from the Cancer.ca website.
i am a breast cancer patient, so, no personal knowledge of what you are dealing with, but, you will find this a safe place, full of knowledgeable people offering support.
wishing you well
Hello and thank you for posting.
I am going to tag a few of our members who have or have had bladder cancer to see if they can share their experience with you. June Bug jwhall DaveBT Ron B - do you have anything you can share with davieskk ?
my husband was diagnosed with stage four metatastic pancreatic cancer. I am so sorry for your diagnosis.
my husband starts palliative chemo next week. He hasn't even looked at anything the oncology team has given in regards to the drugs etc. I am sure he's still in denial. What has your treatment entailed and how are you fairing.
Winterkill I see you’re fairly new to the site, and I’m sorry to read that your husband may be in denial about all of this. I am caregiver for my father, who went through lung cancer. I see you’ve signed up for some groups, and wanted to let you know there is also a group for caregivers that may be helpful to you as well.
I encourage you to do as much self-care as you help your husband through this. Part of that self-care might include talking to someone at your local cancer centre to learn some strategies to help you help your husband as he grapples with his situation (which is also your situation - it affects you, too, as you well know.) If I can offer any help in regard to caregiving, do contact me.
davieskk , I may be on the wrong track here, and the doctors will tell you this, but be careful not to over exert yourself after your surgery. The man I know who had bladder surgery didn’t have any chemo, but he did have follow-up cystoscope every 3 month for several years, and is now on annual testing.
“When the root is deep, there is no reason to fear the wind.” - Japanese saying
I didn't have bladder cancer but my cancer was in the same vicinity, that is, the lower torso (I had cancer of the anal canal). Our experiences may be similar, although I didn't have surgery.
I underwent simultaneous chemo and radiation treatments, which were bad enough. But it was the side effects of the treatments that plagued me for months afterwards. I wish I had reached out for support earlier.