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Osteolytic lesions

Hello, I recently pulled my abductor and hip flexor muscles running up the stairs at work. After weeks of physio it still hurt in my groin area and I had difficulty standing for any length of time without pain. My doctor sends me for xray. 15 hours later my doctor calls me and says I have a hairline fracture in my pelvis and osteolytic lesions seen. He said what it was, but not what it meant. He said that I needed to get some more tests done ( bone scan, ct scan and blood work) he said he would book them to be done in the next couple of weeks and then would see orthopedic surgeon. I said that if he wanted the tests done so fast, it wasn't good. He just said I'm sorry. Of course once I got off the phone I Google it. Cancer. So I am waiting for the surgeon to come back from vacation to get the results. I was talking to my case worker( as I was on workers comp.) And she looked at my radiologist report for the xray, and she says I'm sorry to me too ( she cannot disclose the report). So I am basically freaking out! It must be bad because everyone keeps saying that. I can't sleep or concentrate on anything. I'd like to say I lost weight, but I'm an emotional eater, lol. My husband told me not to tell anyone until we hear the test results. So it will be a month having this weighing on me before any answers, or support from family and friends. I have 4 children 15- 23 years old. I don't want to worry them. Does anyone have experience with lytic lesions? Any advice?

3 Replies
supersu
1580 Posts

@Nowthepatient

hi there nowthepatient and warmest welcome here!

what a HUGE weight you and your groom are carrying.
the days between the first inkling that something is wrong and a definitive diagnosis are torturous.

I cannot share any experience about lytic lesions, but I have heard folks in this community suggest that operating on the ‘live in this moment’ programme helps to minimize the anxiety of waiting for tests/scan results.

when you have your appointment and find out in which direction you are headed, then you can make some definitive plans.

my only suggestion might be to start a note book and jot down every single question you have. as you move through your story, getting that list whittled down to ‘all questions answered’ is so so satisfying.

sending all my positive vibes from sunny Alberta that everything goes as well as it can.

never hesitate to reach out, we are always here.

cheers/hugs
su

#welcomenewmember #waitingforadiagnosis #incidentalfindings #scanxiety

S2020
1551 Posts
@Nowthepatient

Welcome to Cancer Connection.

Waiting is difficult, and waiting for an entire month is extra hard. I hope while you wait, you can spend many moments in beautiful NLL with your husband and four children, doing activities you all enjoy.

It is understandable that you checked Google, although I assure you it is not a good idea. I have lytic lesions, too, in my spine and the parietal bone in my head. Initially, I checked Google, too, and my anxiety soared. However, hemangiomas and venous lakes can appear on scans as lytic lesions, and these are not malignant. In my case, because the lytic lesions have not changed, they are being monitored, but are suspected to be one of these benign conditions.

I hope the same for you. Depending on the location, size and number of lytic lesions, a specialist may recommend a biopsy for you or wait and monitor the lesions with additional scans.

I highly recommend SuperSu’s suggestion to live in the moment, although I know it is easier said than done!

Wishing you the best possible outcome with the follow up appointments, scans and tests. We are here for you to support you and listen while you wait.

#lyticlesions

Cynthia Mac
4217 Posts
Nowthepatient‍ , I agree with the others that the time between “you have X” and getting “X” treated is just awful.

When my dad was diagnosed, I used that period to get organized: I set up the notebook, as supersu‍ mentioned, I made sure Dad had everything he needed in case he had to have surgery (he set up a bedroom on the main floor of his house to minimize stairs, and bought in some frozen meals, and I swept down cobwebs and made sure he had fresh batteries in his smoke alarms, all that sort of thing). My family’s motto has always been “stay busy”, so we just did what we do.

If you find you are struggling too much, I recommend you let your GP know. In the meantime, try to focus only on what you know for sure. If a “yeah but what if” thought comes into your head, try to challenge that, even if only by saying “I don’t know that for sure, and until I do, you have no right to be in my head.”

Please keep in touch and let us know how you’re doing.

#copingstrategies #waitingforresults
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