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Looking at endometrial hyperplasia... or worse
muumi
31 Posts

TLDR: medical history of colon cancer makes endometrial cancer more likely. Should I ask my gynaecologist about the possibility of a hysterectomy or would I do better to go with the less extreme option of a preliminary biopsy?

When I had my CT scan before my colon cancer surgery (LAR), deep in the CT results there was a note that my endometrial tissue was abnormally thick for someone 25 years past menopause (premature menopause around age 41). My doctors were obviously concentrating on the colon findings, but when my oncologist gave me the printout, I read it line-by-line and questioned the anomaly next time I saw my PCP. He referred me for a pelvic ultrasound and based on the results, referred me to a gynaecologist for a biopsy: it could be endometrial hyperplasia, or cancer. A week later no word from the gynaecologist, and I saw my oncologist for a regularly scheduled check-up. She said with the possibility of Lynch syndrome, endometrial cancer is a real risk and sent her own referral to the same gynaecologist, marked URGENT. I got a call back the next day and have an appointment for next week.

Lynch syndrome has neither been confirmed or ruled out. There is apparently something in the original tumour that suggests it, but not definitively. My family has no history of colon cancer which would often be a sign of Lynch, and I would have expected to get cancer earlier if Lynch is an issue – my surgeon agreed… but… the endometrial thing is really scary. Surgeon did say, without knowing about the ultrasound results and apparently without having read the CT scan thing in depth, if Lynch is confirmed I should consider a preemptive hysterectomy.

I'm wondering if I should ask the gynaecologist about just doing the hysterectomy first and the biopsy afterwards. I mean, it would be the second major abdominal surgery of 2022 for me, and I can't say I've completely recovered from the first one, which terrifies me, but frankly the whole thing has me completely terrified.

3 Replies

@muumi

Oh my goodness - you have ( and had ) a lot going on. I am glad you have an appointment next week. Hopefully your questions can be answered by the gynecologist as we are not medical professionals. But maybe some members have been in a similar situation and can chime in on their experience.

Good on you for being so diligent and poring over your reports. It is a good reminder we always need to be our own best advocate.

Let us know how your appointment goes as you are comfortable.

Take care

Lianne

muumi
31 Posts

@Lianne_Moderator

Good advice. As it happens, the gynaecologist took the biopsy sample in his office (MAJORLY PAINFUL but extremely brief) without discussion. He said expect to get news in six weeks or so. At least, nothing more will be going on before Christmas, or New Year, or Epiphany for that matter.

@muumi
sorry to hear it was so painful, even if it was brief. 6 weeks seems like a long time, although there may be backlogs throughout our healthcare system. It wouldn't hurt to check in with the specialist or GP in 2 or 3 weeks to check if it is back.

I hope you can find ways to keep yourself distracted in the meantime.

Lianne

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