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bone acan
sun46
97 Posts
@justjan, @runnergirl.

ia it normal to have a bone acan as part of staging process. I called my surgeon offices to have a meeting jn Friday and then gotta a call for bone scan tomorrow as that's the only appt in the next week but there was no mention of it. freaking me out

7 Replies
ACH2015
2306 Posts

@sun46

I saw your post and thought I could share my experience.

I had a bone scan when cancer (unknown primary stage IV) was discovered. The bone scan was negative for cancer, and I considered the specialist to be very thorough. I had another bone scan just last year, as I had unexplained bone pain and my GP wanted to rule out cancer. It turned out to be more arthritis, and not cancer. Has your medical team mentioned what stage they believe you to be at?

I have always considered any test done for me to be beneficial as to determining my current health and they can be referred to later as a baseline test to look at any disease present, or not or later progression.

I know testing can be unsettling especially when staging is being assessed, but as I said, any testing is good toward current health and baseline results used for later.

Hope this helps

Keep well

ACH2015

ashcon
2181 Posts

Hi @sun46

Yes, having a bone scan done is quite common as part of the diagnosis process. When my cancer was discovered, they knew it had spread to a few lymph nodes. (don't know if that's your situation). So I had a bone scan, chest and abdominal scan, and a brain scan before my treatments started. I was freaked out too, but in hindsight, thankful for the due diligence. And these scan provided a baseline - when I finished all my treatments (chemo, second surgery, and radiation) they repeated the scans and verified a pathological complete response (PCR) to my treatments.

I hope you too get clear results from this scan. And please look at these scans as a good thing. So many people in so many countries around the world don't have this level of thorough care that we have here in Canada 🍁 ❤️.

sun46
97 Posts

ty for your response, can I ask what stage is your cancer?

sun46
97 Posts

ty for your response. they haven't staged it yet but I know it is idc grade 2 in the tumor and second spot looks to be the same, I am trying to look at as they are being thorough but I haven't met with surgeon since 2nd biospy and mri being done, meeting them on Friday and no notice for a bone scan. I have major health anxiety and it doesn't help

brittanyc
107 Posts

Hello @sun46, just wanted to pop in and share how to tag members on forums (as I have just done with your username). Tagging helps members see you're sharing a message meant for them. It sends both a site and email notification.

To tag someone, start by typing the @ symbol. Then, begin typing their username and when the dropdown list appears select the user you are posting to. When their username goes blue, you'll know the tag has been successful.

I will tag @ashcon and @ACH2015 so they can come on back and answer your posts.

Take good care @sun46, I hope that you will get answers soon and have some relief from the anxiety.

#siteusetips #tagging #Biopsy

ashcon
2181 Posts

Hi @sun46

My breast cancer ended up being IDC as well, but stage 3, aggressive Triple Negative. I quickly learned not to get hung up on the stage though. Once you have all these preliminary tests done and they have the FULL picture of your cancer, I'd focus more on what they say the goal of your treatment plan is - curative (they aim to cure you), preventative (they want to prevent further spread, but can't cure you), or palliative (they will assist in managing the cancer, its effects on you and ensuring your quality of life).

I was told they were taking the curative approach with me, despite it being stage 3 and aggressive. I figured if they were going to fight so hard for my life, the least I could do was fight equally hard!

I'm not a doctor, but if tests so far indicate stage 2, I imagine they are taking the curative approach with you. But this is worth talking about with your doctor to clarify and confirm.

I honestly think sometimes doctors have it in their head what they are doing and why, but forget to share their thoughts with their patients. You've got to remind them that you are a part of your medical team and need to be kept in the loop with what's going on and why. 😁

PS: I just stumbled upon your reply. If you want to make sure someone sees your response, “tag” them by putting the ‘@’ symbol in front of their username, and select their name from the list of matches that appears, which is what I did with your username.

PPS: I also found it helpful to get copies of all my scan and test results. If I had any questions, I would ask my doctor to walk me through what the results meant, explain any terminology I didn't understand, and explain what it all meant in relation to the treatments I would be receiving. Doing these things helped relieve alot of anxiety for me!

#IDC #bonescan #diagnosticimaging #stage2

ACH2015
2306 Posts

@sun46

It can be stressful waiting for consults, and tests and finding out you have a test booked without knowing the reason. Try to do things you would regularly do, go for a walk to clear your mind, talk to friends and family and pursue any hobbies you may have to fill your time with less stress and worry. We can't change where we are, but we can change the perspective in which we look at things. I always considered any testing or scans needed as being parts of an important puzzle to get me the best and most comprehensive treatment plan possible.

I also agree with @ashcon when she said:

PPS: I also found it helpful to get copies of all my scan and test results. If I had any questions, I would ask my doctor to walk me through what the results meant, explain any terminology I didn't understand, and explain what it all meant in relation to the treatments I would be receiving. Doing these things helped relieve a lot of anxiety for me!” Wise words from someone who understands and has been there.

Keep well

ACH2015

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