I have no idea how long this will last and what the next steps are. I would like to chat or speak with someone experiencing the same thing.
If there are any questions I can answer or try to, please let me know. You have come to the right place for support and to ask questions. You may want to post in the Advanced Cancer or Man Cave groups as well.
I wish you well with your treatments and I hope we can chat about how you are doing. Cheers.
Peace Love Cure
Hi Roy L thank you so much for your reply. We seem to be somewhat on the same path on life. I am 62 and it has been 14 months. My wife is great support, however, there is only so much she can help.
I also had radiation therapy on my hip and a bit further up on my spine where a tumor crushed the bone and resulted in a hairline crack of the spine. This was causing me a lot of pain so have been on alot of pain killers.
I struggle a lot with how long I have. The doctor's are very evasive and will never comit to any time line.
I have been struggling and the pain killers became a problem for a few days with me taking more than prescribe. I am ok now and decided to reach out to see if I could get help here.
Thanks again for replying it means a lot.
Doctors wont tell us anything because we are all different with how we react to the meds and when they will stop working and then try something else. It really frustrated me at first, but I understand they really dont know until they have tried everything. Glad to hear your wife is supporting you, that is so important. My son got me through the first year and my dog has been awesome for me.
I understand the struggle, I just take a day at a time and try not to think to much about the future. Anytime you need to let off some steam or just want to chat, I will be around.
It was a good thing you have your son and dog. I also have a standard Schnauzer who is also great company he constantly tip his head sideways trying to understand my feeling's he is very intuitive. My son is living in Victoria,BC and my daughter is in Boston so we talk every day and as soon as covid-19 is over I am going to Boston for a couple weeks and then Victoria.
I am also taking slow release hydromorphone and Dilaudid 5 times per day. I asked about the special food and the pain specialist was open to the idea, however, was not sure of the interaction and my wife was against it. I am still thinking of it because I would prefer it over the Dilaudid.
I am also here if you need someone to talk to.
My oncologist and diabetic doctor said if it works, go for it. I know its not for everyone, but gets a big 2 thumbs up from me.
Thank you sir, I appreciate that very much.