Log in or Register to participate in these discussions

Question regarding supraclavicular lymph node.

Question regarding supraclavicular lymph node.

Posted by THawk on Aug 2, 2020 4:48 pm

Hello!  My story is long, but I am wondering if anyone recieved a diagnosis with a left supraclavicular lymph node biopsy?  I have a suspicious node and will be going for a biopsy.  Just curious what I should brace myself for? 

Re: Question regarding supraclavicular lymph node.

Posted by ashcon on Aug 3, 2020 2:41 pm

THawk‍ 

I don't have personal experience myself with biopsy of supraclavicular lymph node, but perhaps these members can share some wisdom from their own experiences:
James1‍ 
Charlie71‍ 

Long story or not, you are welcome to share as much - or as little - as you want anytime here!
When are you having your biopsy done?
---- "Nothing ever becomes real till it is experienced." ----

Re: Question regarding supraclavicular lymph node.

Posted by THawk on Aug 4, 2020 7:54 am

Thank you for the reply.  I will be seeing a specialist this Friday the 7th.  I will then get sent for the biopsy.  My other doctor wanted to wait the full 3 months for a follow up scan, but it is still there, growing and I have so many other things going on, I need this biopsy to have peace of mind at very least.  
I have bilateral axillary node swelling (growing and over 4 months now)  lung nodules and pleural thickening around my airways, ovarian complex cysts, my 4cm thyroid tumor (pathology of follicular type tumor with hurthle cells) was removed 9 weeks ago and I also explanted recalled implants 6 weeks ago.  Great it if comes back negative, but with everything that has gone wrong in my body in 2020, I can't help but need the conclusive determination that I am just experiencing inflammation.  I know my body well, and it is telling me something, so I do not feel unreasonable to need some answers.    

Re: Question regarding supraclavicular lymph node.

Posted by ashcon on Aug 5, 2020 12:34 pm

THawk‍ 
You certainly have had, and currently have, a lot on your plate.

Your story reminds me of my cousin who started experiencing extreme, progressive, unexplainable  pain in 2016.  After getting tested for everything under the sun and also getting her breast implants removed in 2018 (thinking that was the cause) she was finally diagnosed with Lyme Disease, and maybe even with the Epstein Barr Virus.  But that was only after blood samples were tested overseas. Apparently there are different types of Lyme Disease and Canada does not test for all types, so her tests kept coming back "negative" here in Canada.
She is in the process of getting re-tested by a company overseas and hopefully being approved for a special treatment that is available in British Columbia. (She'd have to travel from Ontario to get the treatment)

All this rambling is to say I completely applaud your desire to seek answers, and I understand your conviction that you know your body. You may have to keep rattling cages and being diligent in your self-advocacy.  I will be thinking of you on Friday - keep us updated.

BTW - I just revisited this post by chance. If you want to tag or include another member in a post (so they can respond, or can see that you responded) use the "@ mention" functionality by typing "@" before the first few letters of their username, then select their name from the list that appears.,
---- "Nothing ever becomes real till it is experienced." ----