Log in or Register to participate in these discussions

Tests, test, needing more tests

Tests, test, needing more tests

Posted by LittleLady on Jun 30, 2020 7:27 pm

My story is probably similar to others.  I went to the hospital for one medical related issue and now I'm worried it might be something completely different.   I had a thunderclap headache and went to the ER.  They thought it was an aneurysm, ordered a CT Scan and Spinal Tap both were negative.   They then referred me to a Neurologist who ordered a more detailed CT Scan of my head and neck.   The head scan came back negative but the radiologist has recommended a Thorax CT Scan because the Lymph nodes on the top of my lungs are enlarged.    Both my parents died from lung cancer.  I am a non smoker with no symptoms and yet my mind can't help but think of Lung Cancer.   Now I am just waiting for the CT Scan to be scheduled and then wait for the tests.   In telling my family and friends they all tell me not to worry and that I am overthinking.   I'm not sure if they are trying to be optimistic and not worry or if I really am overthinking.  

Anyway,  not really sure why I am here but somehow just telling my story,  even if it could turn out to be nothing makes me feel better.

Re: Tests, test, needing more tests

Posted by Laika57 on Jun 30, 2020 8:07 pm

Hello, LittleLady‍ 

Crossing my fingers that all will be well.
Did they run both, bacterial and viral cultures? Those can take [forever] up to a week to come back. And sometimes they have to re-do them because the infection started so small.
Has your headache let up?

I have a slipped disc that causes monster headaches if I don't watch my posture.
Here's hoping it's one of the "easy answers ".
Have you hugged your dog today?

Re: Tests, test, needing more tests

Posted by Wendy Tea on Jun 30, 2020 8:15 pm

LittleLady‍ Welcome.  Thanks for a great first post. Whatever your outcome,  you are very welcome here. I did receive a cancer diagnosis and it is terrifying.  But not all problems mean cancer. Not all cancers are fatal. For now, do what I did. Take a deep breath. You are now in the medical system and isn't it a good thing to know your team will work really hard for a positive result. I was so overwhelmed by tests and information that I took it all one day at a time. Try not to get too far ahead.  One thing that helped me was keeping track of everything so that I could go back and refer to my notes. Please stay in touch. We are here to support you.
Healing takes time and opportunity. Wendy Tea

Re: Tests, test, needing more tests

Posted by MCoaster on Jun 30, 2020 9:34 pm

LittleLady‍    Welcome and thank you for posting.

I am not surprised that you are so anxious about what is happening to you at the moment, particularly in light of your parents’  causes of death.   People who tell us not to worry and that we are overthinking are intending to be comforting  but I often would like to ask what their diagnosis background is.  

It is easier said than done but I found it helpful to try to live in the moment because it is the only definite reality.   This happened to me a while ago and started when I was gardening.  I felt dizzy and my vision became blurred with weird lights. We set off on the 20min.drive to emerg. My vision became normal just before we arrived.  Turned the car around and I tried to tell my husband about the veggie garden.   Could not retrieve the word cauliflower etc.  Back to emerg. where they said it was probably a small stroke but the ct was clear and slowly I could retrieve words.  A ferry ride into Vancouver for an immediate neurological consult where the specialist picked up on the visual symptoms and told me it was an unusual migraine.  I had a lot of migraines years ago but all were very painful with nausea etc.   What I learned was not to speculate but also that it is very important to tell doctors all symptoms.

Your doctors are carrying out a wide range of tests and obviously are taking you seriously.   Have they give you any idea of what they looking for and is lung cancer on their list?

I am naturally anxious with a very active imagination and the most useful tools I have in my toolbox are mindfulness and Indra yoga but the most important are being in nature and an Ipad loaded with Scrabble.   

I sincerely hope that you get a definite diagnosis so that your healing can start.

If you wish to please me know how you are doing.

Warm healing thoughts.



Re: Tests, test, needing more tests

Posted by Treepeo on Jul 1, 2020 11:17 pm

Hi LittleLady‍,

I understand why you are concerned.  Who wouldn't be?  Having such a horrific headache, hearing talk of an aneurism and now about swelling, well that is a lot to take in.  I just hope that your CT scan is scheduled sooner rather than later.  I know how hard it is to wait for tests and then wait for the results.  That has become the story of my life.

Has your headache gone away?  If it has, do your best to relax and distract yourself, because stress is never good for anything.  Spoil yourself a bit.  Self love is good for the soul.

I will keep my fingers crossed for you.  Stay well.

Re: Tests, test, needing more tests

Posted by LittleLady on Jul 6, 2020 1:37 pm

Thank you everyone for responding.  It makes me feel so very welcomed in spite of how overwhelmed I currently feel.  My headaches are now gone thankfully but I have tightness in my chest and a lump was found in my breast.

I am now awaiting scheduling of an ultrasound and biopsy.   My family and friends are super supportive and I am learning how to do some meditation and breathing exercises.   They are still also going to do the CT Scan as well.