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Numb and confused...and terrified for my husband and myself...

Numb and confused...and terrified for my husband and myself...

Posted by Cindie56 on Nov 16, 2019 11:26 pm

A little background.. I was diagnosed with breast cancer very young 1 month after marrying my husband. Recently he was experiencing severe diarrhea, weight loss, lack of appetite and eventually turned yellow.  While waiting for a CT scan he got very ill and was rushed to emergency and given a CT scan.  Turned out he had a bleeding ulcer.  During this CT scan they also discovered blocked bile duct, and mass in large bowel. So we got through the ulcer issue, then an ERCP to remove what all the doctors said were “stones” .  Well apparently they aren’t stones.  There is some cells in bile duct that is concerning surgeon. He says that from what he sees this is 100% treatable and that if not for ending up hospitalized for ulcer this may have not been discovered for months until he could get in as an outpatient for CT scan and ERCP. So I need help.  I’ve read about this get rare cancer but the pathology report would not say it was cancer so I don’t know what’s going on. Surgeon said if he operates and it’s precancerous then that’s bonus.  Has anyone had any experience with this type of diagnosis? 
any stories or encouragement would be so wonderful 
thank you 

 

Re: Numb and confused...and terrified for my husband and myself...

Posted by Wendy Tea on Nov 17, 2019 12:05 pm

Cindie56‍ what a story and I am glad you found us so you can search for answers. I saw "100% treatable" and "caught early". Please focus on those points. Don't over research. Ask lots of questions but let the doctors do what they do best. I know its hard to let go and not be in charge. While you are going through all of this, please take care of yourself so you can stay strong and healthy for your husband. It looks like the outcome is going to be very positive.
Best wishes
Wendy Tea

Re: Numb and confused...and terrified for my husband and myself...

Posted by Lianne_adminCCS on Nov 18, 2019 5:32 pm

Hello Cindie56‍  and welcome

It sounds like there are a couple of things going on? What is your next step as far as treatment or appointments. Myself and many others find it helpful to write down any questions that come to you or your husband in preparation for a next appointment. That way you can bring them with you to the next appointment and you will be able to write the answers down. This will allow you to mull it over once you are home and discuss the information rather than trying to remember what was said at the appointment.
Caregiving can be hard - do you have any support for yourself?

Lianne

Re: Numb and confused...and terrified for my husband and myself...

Posted by Cindie56 on Nov 18, 2019 6:54 pm

Thanks so much for reaching out.  I will take your advice once we know what the plan is.  I appreciate you taking the time to contact me.  Hard to get info on this type of cancer as I realize it is rare. Like my daughter said “ mom that’s so rare “
bit someone gets it I thought.
 

Re: Numb and confused...and terrified for my husband and myself...

Posted by SpeedyStill on Nov 18, 2019 9:48 pm

Cindie56‍ 
This is easier sad than done, but in my case my wife who is a nurse told me to not get ahead of the Doctors. The stress was difficult but she was correct.
When I look back my imagination was worse than reality.
I now take it one day at a time and try to keep my imagination in check about the future.
Reach out when necessary this community has been extremely helpful for me.
I wish for you and your husband a good outcome.
SpeedyStill 

Re: Numb and confused...and terrified for my husband and myself...

Posted by Cindie56 on Nov 18, 2019 9:57 pm

Thank you so much for your kind words. I love your profile picture and I assume that’s one of your grandbabies. I bet you’re an awesome Grampa and will ben sure for many years to come.  Your wife is a smart lady and as you said easier said than done but I’m going to try to be a little better at that starting now.  Thanks again for reaching out to me.  I’m scared as heck but there’s no option but to keep moving forward...
all the best to you 
Cindy 

Re: Numb and confused...and terrified for my husband and myself...

Posted by Lacey_adminCCS on Nov 19, 2019 10:49 am

Cindie56‍ - I'm glad you found us here. You have received some great suggestions from our wonderful community. 

We have Information Specialists that are so helpful to talk things out with. Give them a call toll free at 1-888-939-3333. You may also want to connect with Gemini‍ and Vox‍ here in our community. Have you seen our booklet Coping when you have cancer? It has some great info as well.

We are here to listen and support you! 

All the best,
Lacey