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Recent Discussions

Hello all, Just been diagnosed with MAA pT4a N1b Grade 2 moderately differentiated. Anyone know of appendix ca specialist in BC?
@LavenderLamb I will copy and paste your post here in the Rare Cancer Forum - that way more folks will see it! ps-you are doing great figuring this site out…..thank you for your post. I hope you are approved for your PetScan and can move ...
supersu Category Rare or Other Cancers Jul '22
Looking to connect with others that have MDS. My husband was recently diagnosed and he may have a BMT. we are from the okanagan so will be in need of lodging and other recommendations
dena Category Rare or Other Cancers Mar '22
Appendix cancer is very rare but I was diagnosed with low‐grade appendiceal mucinous neoplasms (LAMN) recently after having my appendix removed by a general surgeon and biopsied. I am now looking for an Appendix specialist. Would ...
Meg20 Category Rare or Other Cancers Apr '21
Hello: I had uterine cancer stage 4b about three years ago. At that time when they did the full hysterectomy, the oncologist took out some of the omentum. In the last few weeks, I have been diagnosed with more cancer in the omentum. I'm ...
Tilly59 Category Rare or Other Cancers Apr '21
klay ‍ CrystalGodin ‍ AshP ‍ Good morning all, I have reached out to you all for support, sharing and keeping up with each other's situation. There is strength in numbers and we are truly a rare breed here on Cancer Connection. Our Unknown ...
ACH2015 Category Rare or Other Cancers Mar '21
Health Canada is currently engaging with Canadians with rare diseases to provide feedback on a National Strategy for high-cost drugs for Rare Diseases. You’re invited to share ideas and views on what this strategy could look like to ...
Has anyone heard of this? There is plenty of information on the internet. I'm just at a loss as to how my mother could have been exposed to asbestos, which is cited as a primary cause. My father was a dentist and she worked for him for a few ...
Shell77 Category Rare or Other Cancers Jan '21
angel1234 ‍ Hello Welcome to our site......I have 2 sons with Autism/Special Needs.....when they were younger, Doctors "thought"  it was a Global Developmental Delay (GDD).....but ASD (Autism Spectrum Disorder) was finalized as ...
Hi everyone, My name is Jess and I started my diagnostic journey a few months after I married my wife. A routine blood test at my family doctor found me with high platelets and liver enzymes. I had an ultrasound and they found an enlarged ...
Jholmes Category Rare or Other Cancers Jul '20
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