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Hello: I am new here so I may be posting in the wrong place. If I am, I apologise. I was curious if anyone has or had eye cancer. I have a choroidal malignant melanoma in my right eye. Considered as large. Through another unrelated issue 3 ...
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Looking to connect with someone who has been diagnosed with thymoma to discuss treatment options etc.
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Hi everyone, I hope you are doing ok! I'm wondering if anyone here has ever read/been told how long it takes for distal bile duct cancer to form and develop in the body? Essentially: how long can a person live with distal bile duct cancer ...
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Hello everyone, just an update on my situation for those out there who have MDS. I have MDS-EB1 high risk and I'm about to start cycle #9 of chemo using Vidaza. My blood work has essentially been the same for 8 months with most items below ...
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Hi, I had surgery in Dec to remove an encapsulated Papillary carcinoma. This is very rare. The surgeon didn’t take a wide enough margin and now I need to go back for surgery again and also for the sentinel node biopsy. The pathology report ...
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Hello everyone I’m known as Gam I’m 66 and was diagnosed with stage 4 bile duct cancer 7 months ago. I’ve gone through 6 months of chemo and recently started immunotherapy. Bile duct cancer is very rare, the first oncologist told me there ...
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hi all, just trying to see other peoples experiences with pecoma. I haven’t found anything positive really, and I’m extremely scared because I just had a baby and I can’t even enjoy him because I’ve been stressing about if it’s spread or ...
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Hello all, Just been diagnosed with MAA pT4a N1b Grade 2 moderately differentiated. Anyone know of appendix ca specialist in BC?
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@LavenderLamb I will copy and paste your post here in the Rare Cancer Forum - that way more folks will see it! ps-you are doing great figuring this site out…..thank you for your post. I hope you are approved for your PetScan and can move ...
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Looking to connect with others that have MDS. My husband was recently diagnosed and he may have a BMT. we are from the okanagan so will be in need of lodging and other recommendations